Monthly Archives: February 2015
‘Palliative care for children and young people with life-limiting conditions is an active and total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of quality of life for the child and support for the family and includes the management of distressing symptoms, provision of respite, and care through death and bereavement.'(1)
Palliative care and end of life care in neonates and children is not something that is easily spoken about. Within our communities there are families dealing with complex life limiting situations. The Victorian Paediatric Palliative Care Program (VPPCP) aims to ensure children & adolescents with life limiting conditions & their families receive the best possible palliative care. There are close alliances between the VPPCP and community based palliative care services.
The VPPCP website has a diverse collection of information for families and health professionals. An example is a book called The ripple effect:consider the impact (Sullivan & Wuchatsch 2014). It includes reflections from families who have experienced the impact of health professionals delivering news. Take the time to read some of the stories, they deliver a strong message.