Monthly Archives: September 2016

My Values LinkedIn Group

MyValues (https://www.myvalues.org.au/) have decided to promote MyValues online by setting up a MyValues LinkedIn group and testing MyValues promotion to an audience who are already online who have an interest in health and/or ACP/end of life discussions.
The purpose of the group is to invite as many LinkedIn users who have an interest in health, ACP or end of life discussions as possible to become members and then create discussions on the site around ACP and MyValues. The first priority is to invite group members to try MyValues online and give us feedback. Group members will have the opportunity to try MyValues. Members are welcome to discuss their experience using MyValues and other ACP tools. Group members will also have access to other current ACP information and resources.

For more information go to: https://www.linkedin.com/groups/MyValues-7066612/about or contact Belinda Phillips (Belinda.Phillips@barwonhealth.org.au )

Delirium Clinical Care Standard

Delirium is an acute change in mental status that is common among older people in hospital. Characterised by a disturbance of consciousness, attention, cognition and perception that develops over a short period of time (usually hours to a few days), delirium is a serious condition and is associated with increased risk of harm.

The Commission launched the Delirium Clinical Care Standard and accompanying resources in July 2016, to support safe, high-quality and appropriate care for patients with, or at risk of, delirium.

Compared with people of the same age who do not have delirium, people with delirium have an increased risk of death, increased risk of falls, a greater chance of being discharged to a higher dependency of care, and a greater chance of developing dementia.

Find out more or download the Delirium Clinical Care Standard.

PCACE stands for Palliative Care in Aged Care Evidence.

The PCACE Project News will help to build awareness of the PCACE Project and will explain how this online evidence base for palliative care in aged care is being developed by CareSearch.

WHAT IS PCACE?

You may have heard about the APRAC (2006) and COMPAC (2011) Guidelines. They were the first evidence-based guidelines in the world looking at palliative care in residential aged care and community aged care. As such they played a major role in highlighting the importance of palliative care within the aged care sector and the contribution that guidance can play in improving care. The guidelines now need updating and the PCACE Project will create a new guidance resource that updates the content found in the APRAC and COMPAC guidelines.

The PCACE Project is being funded by the Department of Health and undertaken by CareSearch. This project will create an online evidence site for palliative care in aged care. It will bring together the literature and research evidence to guide practice, as well as hosting tools and resources that can be used to support palliative care for older Australians living in residential aged care or in the community. This new resource will complement other projects in aged care including Decision Assist, the PA Toolkit and the COMPAC modules hosted by Palliative Care Online Training.

GETTING INVOLVED
The PCACE Project is being supported by a National Advisory Group comprising leaders from aged care, palliative care and community organisations and an Expert Advisory Group including academics and practitioners with expertise in clinical practice, aged care and research design and evaluation. Everyone can help. You can suggest tools, resources or projects that need to be included in the online guidance. You can help by reviewing content and pages or by joining in user testing activity. You can provide us with feedback when we need to know what the community thinks by emailing pcace.project@flinders.edu.au. You can help us promote the PCACE Project and the new resource by sharing the newsletter with your work colleagues.

REGISTER TO RECEIVE THE NEWSLETTER
You can subscribe to this newsletter online at the PCACE Project ’Getting Involved’ page.

To find out more, share something, or express your interest in being involved please email pcace.project@flinders.edu.au.

NEW LITERATURE
National guidelines for spiritual care in aged care
Meaningful Ageing Australia have developed guidelines for organisations and health care-givers to recognise and provide spiritual care to older people in residential aged care or home based settings. An overview of the key spiritual needs of older people and the five domains of spiritual care are provided in two short videos.

Clinical practice guidelines and principles of care for people with dementia
Clinical practice guidelines have been released for health and aged care staff who provide care for people with dementia in community, residential and hospital settings. Recommendations for responding to the needs and preferences of individuals with dementia, their carer(s) and families are given. An assessment guide facilitates the timely diagnosis of dementia.

Advance care directives in residential aged care
Leditshke IA, Crispin T, Bestic J. Advance care directives in residential aged care. Aust Fam Physician. 2015 Apr;44(4):186-90.
An overview of advance care directives (ACDs) is provided including the Code for Ethical Practice in ACDs and best practice principles for advance care planning in residential aged care facilities.

NEW RESOURCES AND PROJECTS
palliAGEDnurse app
This app helps nurses in general practice, residential aged care and community settings provide a palliative approach to care for older people. It is free to download and to access via the palliAGEDnurse website.

PA Toolkit: New Careworker Resources
New educational videos and factsheets introduce careworkers to key aspects of clinical care and outline their scope of practice. They are free to use and can be found on the resources page of the Residential Aged Care Palliative Approach Toolkit website.

You can also print a PDF version of the newsletter (274kb pdf) for yourself or for staff who do not have access to email.

“I thought I was prepared to be my mother’s healthcare proxy . . .”

With legislation now before the Victorian Parliament to simplify advance care planning, a recent Huffington Post story provides a very good illustration of the difference between thinking about death and dying decisions in the abstract and dealing with them in a real life situation. Social Work Professor Michael Friedman thought he was prepared to be his mother’s healthcare proxy but found he was not prepared for his own emotions, the ethical questions, or the difference between the idea of death and its concrete reality. You can read his story here.

Unspoken (What will become of me?)

Presented by Health Issues Centre this is a provocative and comedic event looking at the lighter side of ageing, declining capacity and how to stay in charge of your future. Each event tour through the performance installations has restricted participants and takes approximately 1 hour so online registration is strongly recommended.
When: 27 – 30 October 2016
Where: State Library of Victoria, 328 Swanston Street, Melbourne
Further information or bookings are available here

PCV Board and Life Member Nominations

Nominations close Monday 10 October 2016
Nominations for PCV Board of Directors
The nomination form and a copy of the position description for Directors of the PCV Board are available from our website here

Nominations for Life Membership of PCV
Further information including eligibility criteria and how to nominate are available here

Dying to Talk

In May, Palliative Care Australia launched their new website, dyingtotalk.org.au. This website is aimed at the general community to break down barriers to talking about death and to promote early discussions about end-of-life care preferences.

One of the key features is the Dying to Talk Discussion Starter. This guide walks people through a reflection on their values and how this translates to end-of-life care preferences. It also gives tips for talking to family and loved ones about preferences for care. PCA will continue to promote this both online and offline over the next year.

Save the Date | 2017 Australian Palliative Care Conference

The countdown is on to the 2017 Australian Palliative Care Conference. It will be held a year from now from 6-8 September 2017 in Adelaide, South Australia. The theme is Connection with Community. Sign up to the mailing list to keep informed. Below is an update on some of the exciting activities that are happening around Australia.
Read more

Free palliative care online training helping people live well with chronic illness

Palliative Care has become widely recognised as one of the most vital disciplines in Australian health, with our ageing population and increasingly effective medical treatments bringing about longer and longer final care stages of life, writes Australian Healthcare and Hospitals Association Chief Executive, Alison Verhoeven.
Read more

Palliative Care Research Network-September newsletter

 Highlights from recent PCRN events
 Upcoming PCRN event
 Call for Expressions of Interest to join the PCRN Research Advisory Group in 2017
 Useful Resources in Palliative Care Research
 Congratulations to recipients of the 2016 PCRN Travel Grants
 Upcoming Funding Opportunities 2016
 Recent Publications Relevant to PCRN Members
 Upcoming Conferences
 Membership Update

Please find attached the quarterly Palliative Care Research Network e-News or read the newsletter online.

* Please note this PDF version of e-news is interactive and allows you to click on links and download information if you are connected to the internet.

For further information about the Palliative Care Research Network, please visit the website www.pcrnv.com.au or contact us by email on pcrnv@svha.org.au or by phone on 03 9416 0000.

If you have any relevant information you would like to share with the Palliative Care Research Network community, please email pcrnv@svha.org.au with the subject ‘PCRN e-News Submission’ and we will consider publishing your news in the next quarterly edition.

pcrn-e-news-september-2016