Help to start a conversation on end-of-life care

Palliative Care Australia has released two new online resources to make it easier for people to record and share their care wishes and preferences at the end of life.

The online Dying to Talk discussion starter and card game were officially launched in Canberra by the Federal Minister for Health Greg Hunt during Palliative Care Week.

PCA CEO Liz Callaghan said the online discussion starter resource expands on the success of the printed version, which has been distributed to 15,000 people around Australia.

“The online discussion starter and card game is an easy, interactive and accessible way for all Australians to work out what is most important for them at end of life,” she said.

The online card game includes an Aboriginal and Torres Strait Islander specific deck to provide culturally appropriate options such as visiting or dying on country.

“After you input your answers you can download, print or e-mail them to yourself, making it easy to share your wishes with your loved ones, carers or healthcare professionals,” said Ms Callaghan.

A national survey conducted by PCA found that while 85 per cent of Australians believe it is important to have a conversation with family about the care they would like to receive at end of life, only a third of people surveyed have actually had the discussion.

Further, 83 per cent of Australians believe it is important to put their end-of-life wishes in writing, but only 21 per cent have done this.

Access the resources here.

Resources

EMRPCC Clinical Documents

.Guidelines for using the BD Saf-T-Intima System in Aged Care
.Noisy Breathing at the End of Life- family leaflet 2016
.Management of Respiratory Secretions in the Terminal Phase May 2016
.Syringe Driver Drug Compatibilities- May 2016
.Opioid Conversions May 2016

Palliative approach

Communication tools (including dementia situations)

Talking about dementia&dying(2011)

Dementia Booklet – end stage care (3rd ed.2011) E.Chang (University Western Sydney)

Advance Care Planning

Palliative care brochures (accessible at these external websites)

CALD resources

Palliative Care Booklet for Culturally & Linguistically Diverse Communities ( 2009)

Customs & Beliefs- Death & Dying (Loddon Mallee Palliative Care Consortium -2011)

Centre for Cultural Diversity in Ageing website

Syringe Drivers

Online education is available from Queensland Health and other information is available from CareSearch

Pain Management

Australian Pain Society has  several publications applicable to the aged care facilities

End of Life Care

Residential Aged Care – End of Life Care Pathway (via Caresearch)     or via Qld Government

Victorian End of Life Care Pathways -Coordinating program

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