A new website from the Australian Centre for Health Law Research aims to provide practical legal information for consumers, practitioners and the community, in relation to End of Life law in Australia.
End of Life law in Australia covers the key aspects of the law for each Australian jurisdiction, and includes laws relating to advance directives, guardianship, palliative care, withholding and withdrawing life-sustaining treatment, organ donation and euthanasia.
Please contact ACHLR Coordinator Penny Neller for further information and/or contributions.
New Edition – Supporting a person who needs palliative care – a guide for family and friends – Palliative Care Victoria
This useful guidebook written by Professor Peter Hudson and Dr Rosalie Hudson has been reviewed and updated and is now available to purchase in bulk from Palliative Care Victoria. You can view the updated version on the website and access the order form here.
Guide to the Medical Treatment Planning and Decisions Act 2016
The Act establishes a single framework for medical treatment decision making for people without decision making capacity ensuring people receive medical treatment that is consistent with their preferences and values. It was passed in November 2016 and will come into effect on the default date of 12 March 2018. You can access a guide to the Act and a Summary of the Act on the DHHS website.
Palliative Care Bridge – website
The Palliative Care Bridge delivers innovative educational videos and resources on palliative care by respected experts and specialists in their fields with the aim of equipping users of the site to gain confidence and specialised knowledge in the delivery of appropriate palliative care to people in need.
Supportive & Palliative Care Indicators Tool (SPICT) – App now available
This is the first version of the SPICT-App and includes information about the SPICT; advice on how to assess and plan care for people identified with it; and tips on effective communication.
The App is available for free download on iPhone and androids. The SPICT project team are keen to receive feedback and have included a mechanism within the App to provide immediate feedback. They are also keen to develop the resource links within the patient and family assessment section so send through resource links you think could be useful.
Click here for further information and to download the App.
Palliative Care – Referral and Symptom Control pathways
The Palliative Care pathways aim to help GP’s navigate challenges around access, complexity and diversity of services, management of pain and suffering, symptom management and medications. The first group of pathways are now live:
• Palliative Care Overview
• New Palliative Care Patient
• Symptom Control in Palliative Care
• Referral to Palliative Care Services
• GP Palliative Care Resources
These pathways were developed in collaboration with local GPs, inpatient palliative care teams, community palliative care providers, and health professionals from the palliative care consortia, pharmacist, oncologist, RACFs, residential-in-reach and deputising services. You can view these pages by clicking on the links below.
To access these pathways via automatic login, complete and return the request form (PDF / Word).
Help to start a conversation on end-of-life care
Palliative Care Australia has released two new online resources to make it easier for people to record and share their care wishes and preferences at the end of life.
PCA CEO Liz Callaghan said the online discussion starter resource expands on the success of the printed version, which has been distributed to 15,000 people around Australia.
“The online discussion starter and card game is an easy, interactive and accessible way for all Australians to work out what is most important for them at end of life,” she said.
The online card game includes an Aboriginal and Torres Strait Islander specific deck to provide culturally appropriate options such as visiting or dying on country.
“After you input your answers you can download, print or e-mail them to yourself, making it easy to share your wishes with your loved ones, carers or healthcare professionals,” said Ms Callaghan.
A national survey conducted by PCA found that while 85 per cent of Australians believe it is important to have a conversation with family about the care they would like to receive at end of life, only a third of people surveyed have actually had the discussion.
Further, 83 per cent of Australians believe it is important to put their end-of-life wishes in writing, but only 21 per cent have done this.
EMRPCC Clinical Documents
Saf-T-Intima Guidelines for Aged Care (2018)
Noisy Breathing at the End of Life- family leaflet 2016
Management of Respiratory Secretions in the Terminal Phase May 2016
Syringe Driver Drug Compatibilities- May 2016
Opioid Conversions May 2016
- The Palliative Approach Toolkit is available from via Caresearch.
- Palliative Approach toolkit – Self directed learning package (16.52 MB) has 3 sections – care worker, EN/RN introduction & EN/RN Advanced. It is a very large document.
- Affirming Life – a palliative approach guide for family with loved ones in aged care is a useful book for families and staff. It is a large document- be aware before hitting print.
Communication tools (including dementia situations)
Advance Care Planning
This website was designed in collaboration with Australian religious and cultural leaders and organisations. It is intended to provide informational support for health professionals conducting advance care planning with people from different religious and cultural backgrounds. The website is open access and may be utilised by members of the general public. Information available on this website has been provided as a guide only and should not be generalised to all people of a particular religion/faith or culture.
- Eastern Health has a document called the EH Advance Care Plan-Directive Aged Care -July2014 This can be co-branded with your facility logo by contacting the Eastern Health Advance Care Planning team
- Advance Care Planning Australia – website has links on the home page to ACP documents. Online training is via a tab on the top menu of the website.
- VictorianAdvance care planning – strategy 2014-18
Palliative care brochures (accessible at these external websites)
CareSearch has developed a suite of multicultural videos in English, Greek, Italian, Cantonese, Mandarin and Arabic.
About palliative care 17 community languages
PCV information about palliative care is now available in 17 community languages. This includes new oral recordings as well as bilingual handouts and searchable website pages. The 6 new languages recently completed are: Dutch, Hebrew, Hindi, Russian, Spanish and Yiddish. To access these resources or the order form for brochures visit the community languages page on PCV’s website here.
Centre for Cultural Diversity in Ageing website
Australian Pain Society has several publications applicable to the aged care facilities
End of Life Care
ELDAC toolkit available
Funded by the Australian Government Department of Health, End of Life Directions for Aged Care (ELDAC) is a new online resource supporting aged care workers to find palliative care and advance care planning resources and state-specific information and services. Evidence-based toolkits make providing care easier. You can join their national approach to improve palliative care and advance care planning for older Australians at www.eldac.com.au.
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Mesothelioma Guide is an advocacy organization dedicated to helping patients diagnosed with asbestos illnesses. As Mesothelioma affects the patient very quickly. Many patients need outside help through caregivers and hospice services to ease the toll that mesothelioma takes on their body. The services and resources that can be provided are 100% free to patients and family members.