A new website from the Australian Centre for Health Law Research aims to provide practical legal information for consumers, practitioners and the community, in relation to End of Life law in Australia.
End of Life law in Australia covers the key aspects of the law for each Australian jurisdiction, and includes laws relating to advance directives, guardianship, palliative care, withholding and withdrawing life-sustaining treatment, organ donation and euthanasia.
Please contact ACHLR Coordinator Penny Neller for further information and/or contributions.

New Edition – Supporting a person who needs palliative care – a guide for family and friends – Palliative Care Victoria
This useful guidebook written by Professor Peter Hudson and Dr Rosalie Hudson has been reviewed and updated and is now available to purchase in bulk from Palliative Care Victoria. You can view the updated version on the website and access the order form here.

Guide to the Medical Treatment Planning and Decisions Act 2016
The Act establishes a single framework for medical treatment decision making for people without decision making capacity ensuring people receive medical treatment that is consistent with their preferences and values. It was passed in November 2016 and will come into effect on the default date of 12 March 2018. You can access a guide to the Act and a Summary of the Act on the DHHS website.

An online resource to support culturally responsive palliative care for Aboriginal and Torres Strait Islander Peoples (1.17MB pdf).

Palliative Care Bridge – website

The Palliative Care Bridge delivers innovative educational videos and resources on palliative care by respected experts and specialists in their fields with the aim of equipping users of the site to gain confidence and specialised knowledge in the delivery of appropriate palliative care to people in need.

Supportive & Palliative Care Indicators Tool (SPICT) – App now available

This is the first version of the SPICT-App and includes information about the SPICT; advice on how to assess and plan care for people identified with it; and tips on effective communication.

The App is available for free download on iPhone and androids. The SPICT project team are keen to receive feedback and have included a mechanism within the App to provide immediate feedback. They are also keen to develop the resource links within the patient and family assessment section so send through resource links you think could be useful.

Click here for further information and to download the App.

Palliative Care – Referral and Symptom Control pathways
The Palliative Care pathways aim to help GP’s navigate challenges around access, complexity and diversity of services, management of pain and suffering, symptom management and medications. The first group of pathways are now live:
Palliative Care Overview
New Palliative Care Patient
Symptom Control in Palliative Care
Referral to Palliative Care Services
GP Palliative Care Resources
These pathways were developed in collaboration with local GPs, inpatient palliative care teams, community palliative care providers, and health professionals from the palliative care consortia, pharmacist, oncologist, RACFs, residential-in-reach and deputising services. You can view these pages by clicking on the links below.
To access these pathways via automatic login, complete and return the request form (PDF / Word).

Help to start a conversation on end-of-life care

Palliative Care Australia has released two new online resources to make it easier for people to record and share their care wishes and preferences at the end of life.

The online Dying to Talk discussion starter and card game were officially launched in Canberra by the Federal Minister for Health Greg Hunt during Palliative Care Week.

PCA CEO Liz Callaghan said the online discussion starter resource expands on the success of the printed version, which has been distributed to 15,000 people around Australia.

“The online discussion starter and card game is an easy, interactive and accessible way for all Australians to work out what is most important for them at end of life,” she said.

The online card game includes an Aboriginal and Torres Strait Islander specific deck to provide culturally appropriate options such as visiting or dying on country.

“After you input your answers you can download, print or e-mail them to yourself, making it easy to share your wishes with your loved ones, carers or healthcare professionals,” said Ms Callaghan.

A national survey conducted by PCA found that while 85 per cent of Australians believe it is important to have a conversation with family about the care they would like to receive at end of life, only a third of people surveyed have actually had the discussion.

Further, 83 per cent of Australians believe it is important to put their end-of-life wishes in writing, but only 21 per cent have done this.

Access the resources here.

Resources

EMRPCC Clinical Documents

Saf-T-Intima Guidelines for Aged Care (2018)
Noisy Breathing at the End of Life- family leaflet 2016
Management of Respiratory Secretions in the Terminal Phase May 2016
Syringe Driver Drug Compatibilities- May 2016
Opioid Conversions May 2016

Palliative approach

Communication tools (including dementia situations)

Talking about dementia&dying(2011)

Dementia Booklet – end stage care (3rd ed.2011) E.Chang (University Western Sydney)

Advance Care Planning

    About ACPTalk
    This website was designed in collaboration with Australian religious and cultural leaders and organisations. It is intended to provide informational support for health professionals conducting advance care planning with people from different religious and cultural backgrounds. The website is open access and may be utilised by members of the general public. Information available on this website has been provided as a guide only and should not be generalised to all people of a particular religion/faith or culture.

  • Eastern Health has a document called the  EH Advance Care Plan-Directive Aged Care -July2014 This can be co-branded with your facility logo by contacting the Eastern Health Advance Care Planning team
  • Advance Care Planning Australia   – website    has links on the home page to ACP documents. Online training is via a tab on the top menu of the website. 
  • VictorianAdvance care planning – strategy 2014-18

Palliative care brochures (accessible at these external websites)

CALD resources

CareSearch Videos
CareSearch has developed a suite of multicultural videos in English, Greek, Italian, Cantonese, Mandarin and Arabic.

Palliative Care Booklet for Culturally & Linguistically Diverse Communities ( 2009)

Customs & Beliefs- Death & Dying (Loddon Mallee Palliative Care Consortium -2011)

About palliative care 17 community languages
PCV information about palliative care is now available in 17 community languages. This includes new oral recordings as well as bilingual handouts and searchable website pages. The 6 new languages recently completed are: Dutch, Hebrew, Hindi, Russian, Spanish and Yiddish. To access these resources or the order form for brochures visit the community languages page on PCV’s website here.

Centre for Cultural Diversity in Ageing website

Syringe Drivers

Online education is available from Queensland Health and other information is available from CareSearch

Pain Management

Australian Pain Society has  several publications applicable to the aged care facilities

End of Life Care

Residential Aged Care – End of Life Care Pathway (via Caresearch)     or via Qld Government

Victorian End of Life Care Pathways -Coordinating program

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